Bipolar Disorder in Children and Teens: A Parent’s Guide

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This booklet is a guide for parents who think their child may have symptoms of bipolar disorder, or parents whose child has been diagnosed.

Source: National Institute of Mental Health

Information for parents and carers with a child or young person recently diagnosed with an autism spectrum disorder

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If you have just been told that your child or young adult has been diagnosed with an autism spectrum disorder (ASD), this booklet will tell you the main things you need to know.

This booklet has been developed by NHS Education for Scotland and funded by the Scottish Government.

Source: The Playfield Institute

Fetal Alcohol Spectrum Disorders (FASD): Just The Facts

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FASD is an umbrella term describing the range of effects that can occur in an individual whose mother drank alcohol during pregnancy. These effects may include physical, mental, behavioral, and/or learning disabilities with possible lifelong implications.

Source: Not A Single Drop

Dental Care Every Day: A Caregiver's Guide

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This booklet for caregivers details the important role they play at home in maintaining good oral health for their family member or client with special needs.

Source: National Institute of Dental and Craniofacial Research

The HELP Guide to Cerebral Palsy

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Dr. Nadire Berker and Dr. Selim Yalçin, members of HELP's Turkish Board, have created an excellent publication providing an overview of the diagnosis and management of Cerebral Palsy. This publication is authoritative, comprehensive, extensively illustrated, colorful, and engaging. The need for this publication is enormous, as Cerebral Palsy is common throughout the world and no affordable management guide is currently available.

Source: Global HELP

Fragile X - A to Z: A Guide for Families By Families

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This guide is intended to help families cope with the daily challenges of living with a child who has a disability, specifically Fragile X Syndrome. Many of the topics discussed may pertain to parents with children affected by other disabilities and with typically developing children.

Source: FRAXA Research Foundation

Say ‘No’ to Bullying: An information leaflet for young people with spina bifida and/or hydrocephalus

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Bullying is one kind of abuse. You may have heard this word but not know what it means. Abuse is when someone treats you in a way that could hurt you – either hurt your feelings and make you very unhappy or hurt your body.

Source: Association for Spina Bifida and Hydrocephalus (UK)

Supporting Feeding & Oral Development in Young Children: Guidelines for Parents - Support Feeding & Oral Development in young children with DS

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This booklet is intended to be used as a reference for the first 2 or 3 years of life. You are not expected to read it from cover to cover, but to dip in and out of it as questions arise or as you need guidance regarding your baby’s next step. It is also not intended to replace direct contact with the multidisciplinary team.

Source: Down Syndrome Ireland

Ten Reasons For Inclusion

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Colour A4 poster outlining arguments supporting the inclusion of disabled children in mainstream schools.

Source: Centre for Studies on Inclusive Education (UK)

Indoor Air Repair Kit: Home

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The Indoor AIRepair program was developed by Allergy & Asthma Network Mothers of Asthmatics with funding from the Environmental Protection Agency. The goal of the project is to help families learn practical, low-cost ways to reduce asthma-related allergens and irritants indoors.

Source: Allergy & Asthma Network Mothers of Asthmatics (AANMA)

Top tips for working with a preschool child who has ASD

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Behaviour

• Challenging behaviour is often an attempt at communication – it’s not being naughty. Try to identify the trigger for the behaviour. Identify sources of anxiety.
• The child may have outbursts of aggression just like a much younger child due to delayed emotional development.
• Be consistent in everything you do. Discuss behavioural issues with others and make sure everyone agrees on the approach to be used.
• Always give advance warning of changes in routine.

Source: autismhelp.info

Make A Difference: Talk to Your Child About Alcohol

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A guide for parents and guardians of young people ages 10 to 14. It describes the problems associated with alcohol use among young people, as well as the way parents can talk with children about these issues. (National Institute on Alcohol Abuse and Alcoholism)

Source: Leadership to Keep Children Alcohol Free

The Mountain You've Climbed: A Teen’s Guide to Childhood Cancer Survivorship

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The newest addition to The Mountain You Have Climbed series answers questions on the minds of teen survivors of childhood cancer. Written for teens and young adults, this guide addresses their special concerns about dating and relationships, medical and school issues and their futures. Interviews with teen survivors reflect on their journey and the choices ahead.

Source: National Children's Cancer Society

Guidelines for Inclusion: Ensuring Access to Education for All

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This report has gone through an external and internal peer review process, which targeted a broad range of stakeholders including within the Education Sector at UNESCO headquarters and in the field, Internal Oversight Service (IOS) and Bureau of Strategic Planning (BSP). These guidelines were also piloted at a Regional Workshop on Inclusive Education in Bangkok. A wide range of experts from the Asia Pacific region provided feedback for further development. Finally, this document was circulated to Steering Committee of the Flagship “The Right to Education for Persons with Disabilities: Towards Inclusion.” This document is a response to the need for a systematic approach for identifying excluded groups. It is intended to be a “living document” which serves as a dynamic tool of analysis which will be revised in the coming years to reflect the reality of marginalized and excluded children.

Source: UNESCO

A Guide to Cerebral Palsy

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An easy-to-read educational booklet offered free of charge - once read an individual will have a good understanding of CP and some of the challenges it presents.

Source: Cerebral Palsy Association of BC

Supporting Parents with Learning Disabilities - Good Practice Guidance Easy Read

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Parents with learning disabilities

We know that:

• parents with learning disabilities are among the poorest and most disadvantaged parents
• they are more likely than other parents to have their children looked after by Social Services

We also know that parents with learning disabilities can be good parents and give their children a good start in life... so long as they get the right help and support.

Source: valuingpeople.gov.uk

All About ADHD

A booklet for parents and carers of a child diagnosed with Attention Deficit Hyperactivity Disorder, or for anyone wondering if their child may have ADHD. It is also useful for relatives, friends, teachers and GPs or health visitors. This booklet will also give you answers to some of the most common questions, point you in the direction of more detailed publications and provide details of organisations that can help

Source: Mental Health Foundation (UK)

Help Your Child Gain Control Over Asthma

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Help Your Child Gain Control Over Asthma, a low-literacy asthma management guide. The brochure provides parents of children with asthma with the information they need to improve their children's quality of life. It is filled with tips on managing asthma by developing a management plan and following some simple steps to minimize exposure to asthma triggers found indoors and out. The brochure includes helpful visuals that display how to implement the suggested steps.

Source: U.S. Environmental Protection Agency

Epilepsy and Seizure Disorders: Parent Resource Guide

Children are one of life ’s greatest gifts. As parents, we want to do all we can to nurture and take care of our children. As a parent of a child with epilepsy, also referred to as seizure disorders, you face the additional challenge of learning as much as you can about your child ’s special needs. This Guide was written with you in mind. It was written to give you some very basic information, including an introduction to epilepsy and seizure disorders. It is not intended to provide medical advice. Any questions related to the medical treatment of your child should always be addressed to your child ’s pediatrician/ family physician or neurologist.

Source: Epilepsy Foundation of Northern California

Outcomes for Premature Babies

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The overall outcomes for premature babies are good. However, there are risks to being born early. The booklet 'Outcomes for Premature Babies' explains those risks and answers the common questions asked by parents. Please remember that the risks of most of the complications mentioned here are small and are uncommon in babies born after 30 weeks of pregnancy.

Source: NSW Pregnancy and Newborn Services Network

Autism Spectrum Disorders: Booklet for Young People

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This booklet is for parents and carers of children and young people who:

• may have autism spectrum disorder (ASD); or
• have already been diagnosed with ASD.

Source: Scottish Intercollegiate Guidelines Network (UK)

Ohio’s Parent Guide to Autism Spectrum Disorders

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This guide was developed and written by parents of individuals with autism spectrum disorders. The examples provided are from their experiences. The information included in this manual is a result of their answer to the question:

When your child was first diagnosed,what information did you need most?

Source: Ohio Center for Autism and Low Incidence (OCALI)

International Dyslexia Association's Comparison Matrix of Multisensory, Structured Language Programs

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This comparison enables you to compare similarities and differences among various approaches that are widely used throughout the United States.

Source: International Dyslexia Association

Inclusive Education: Where there are few resources

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This book aims to provide a background and critical overview of key issues, concepts and strategies in relation to inclusive education, that are relevant to situations where economic resources and access to information is limited.

Source: Enabling Education Network (UK)

Information for Teachers on Congenital Heart Conditions

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The aim of this fact sheet is to give you information on congenital heart conditions and how they may affect children at school.

Source: Children's Heart Federation (UK)

Your Child & ADHD: A Guide to Parents

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A free introductory booklet on ADHD. The book is not intended to be a complete reference on ADHD in children, but instead a basic overview or introductory primer on the causes, issues, and choices parents will want to know about. The book should not be used as a substitute for medical or psychiatric evaluation of a child whose behavior indicates he or she has attention deficit. Please contact a qualified professional to make sure your child receives a proper assessment and intervention.

Source: 4 ADHD

Taking the First Step: A Guide for Parents of Children with Learning Disabilities

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This booklet is for parents who suspect that their child needs help because he or she struggles with learning.

Source: LD Online

Autism Overview: What We Know

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But there are things that we do know about autism. This fact sheet offers broad information about autism and answers some of the more common questions that parents and families often have about the disorder.

Source: National Institute of Child Health and Human Development (NICHD)

Families and Fragile X Syndrome

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Fragile X syndrome (also called Fragile X) is the most common inherited form of mental retardation. It results from a change, or mutation, in a single gene, which can be passed from one generation to the next. Fragile X appears in families of every ethnic group and income level.

Source: National Institute of Child Health and Development (US)

Guide to choosing dyslexia-friendly books for kids

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Dyslexia causes difficulties in learning to read, write and spell. Short-term memory, mathematical ability, concentration, personal organisation and sequencing may also be affected.Dyslexia usually arises from a weakness in the processing of language-based information. Biological in origin, it tends to run in families, but environmental factors also contribute. Dyslexia can occur at any level of intellectual ability.

Source: Dyslexia Action

Facts About Cornelia de Lange Syndrome

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As with other syndromes, individuals with CdLS strongly resemble one another. Common characteristics include: low birthweight (often under five pounds), slow growth, small stature, and small head size. Typical facial features include thin eyebrows (which frequently meet at the midline), long eyelashes, a short upturned nose, and thin downturned lips. Other findings may include excessive body hair, small hands and feet, partial joining of the second and third toes, incurved fifth fingers, a cleft palate, and conditions such as gastroesophageal reflux, seizures,
feeding difficulties, eye problems, hearing loss, behavioral issues, and developmental delays. Limb differences, including missing limbs or portions of limbs (usually fingers, hands, or forearms) are also found in some individuals.

Source: Cornelia de Lange Syndrome Foundation

Let's Talk About Down Syndrome

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This booklet is for people with a learning disability.
It will tell you about Down’s syndrome.

Source: dsscotland.org.uk

Attention Deficit Hyperactivity Disorder (ADHD): A Practical Guide for Schools

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The purpose of this booklet is to provide school staff with information about ADHD and how children with the condition can be helped in school.

Source: selb.org