Down Syndrome Diagnosis During Pregnancy

Click on the image to download informational guide

You’ve just found out your baby has Down syndrome. What is that going to mean for your baby and your family? Parents who were told that their baby had Down syndrome before the baby was born have shared their experiences through new research. They have described how they would’ve liked to have learned their baby has Down syndrome.

Source: Brighter Tomorrows

Seizure First Aid

Click on the image to download poster

This 3-step guide provides easy reference to Seizure First Aid.

Source: Epilepsy Australia

Understanding Learning Disabilities

Click on the image to download booklet

This booklet is aimed at people who have a learning disability, their families and friends. It explains what it means, what some of the causes are, and what the effects may be. It also outlines some of the different kinds of support that are available to people who have these problems and their families, and how to access this.

Source: mind.org.uk

Down Syndrome: New Parents Guide

Click on the image to download publication.

Most of our parents find out that their baby has Down's syndrome soon after the birth and the news is a great shock. We understand that your life is no longer following the expected route, but we want you to know that you are not alone, and we hope that we can help you celebrate your baby's life.

Source: DSA UK

The Autism Guidebook for Washington State: A Resource for Individuals, Families, and Professionals

Click on the image to download guidebook

This document was developed through the efforts of the Caring for Washington Individuals with Autism Task Force (ATF), a Governor appointed group comprised of parents and professionals, established in 2005 by the Washington State Legislature. The ATF gathered information and consulted with experts and individuals with Autism Spectrum Disorders (ASD) to inform the state and public on:

• Autism services needed
• Autism rates
• Access to care
• Effectiveness of current services
• Other issues or concerns needed to provide sound policy recommendations

Thirty-one specific recommendations emerged from the work calling for improvement of care and outcomes for individuals with ASD.

Source: Washington State Department of Health

Information for Parents: Cerebral Palsy

Click on the image to download booklet

This is a guide for parents with young children who have recently been told that their child has cerebral palsy, or who are in the process of getting a diagnosis.

Source: Early Support (UK)

Safety Tips for Children with Cardiac Conditions

Click on the image to download flyer

These tips can help you keep your child safe and add to general safety advice for your child’s stage of development. Use this guide to help keep your child and family safe both in and outside of your home. Each home is different and no list is complete or fits every child and household. You know what is best for your child. Adapt these tips to meet the needs of your child and family. What works now may change as your child grows and develops.

Source: Center for Children with Special Needs

Family Asthma Guide

Click on the image to download guide.

Air moving in and out of the lungs may be blocked by:
• swelling of the airways
• too much mucus in the airways
• muscles squeezing around the airways

It is very important that kids with asthma get ongoing medical care, even when symptoms are not bad. If asthma is not treated, it can cause lifelong lung disease or permanent lung damage.

Source: Children's Health Fund

Autism Spectrum Disorders

Click on the image to download booklet.

The autism spectrum disorders can often be reliably detected by the age of 3 years, and in some cases as early as 18 months.2 Studies suggest that many children eventually may be accurately identifi ed by the age of 1 year or even younger. The appearance of any of the warning signs of ASD is reason to have a child evaluated by a professional specializing in these disorders.

Source: NIMH

Guidelines on the provision of manual wheelchairs in less resourced settings

Click on the image to download guidelines.

The wheelchair is one of the most commonly used assistive devices for enhancing personal mobility, which is a precondition for enjoying human rights and living in dignity and assists people with disabilities to become more productive members of their communities. For many people, an appropriate, well-designed and well-fitted wheelchair can be the first step towards inclusion and participation in society.

Source: WHO

Fetal Alcohol Spectrum Disorders: What Everyone Should Know

Click on the image to download FASD fact sheet.

Fetal Alcohol Spectrum Disorders (FASD) is an umbrella term describing the range of effects that can occur in an individual whose mother drank alcohol during pregnancy. These effects can include physical, mental, behavioral, and/or learning disabilities with possible lifelong implications. The term FASD is not intended for use as a clinical diagnosis.

Source: National Organization on Fetal Alcohol Syndrome

Identifying and Treating Attention Deficit Hyperactivity Disorder: A Resource for School and Home

Click on the image to download

Attention Deficit Hyperactivity Disorder (ADHD) is a neurological condition that involves problems with inattention and hyperactivity-impulsivity that are developmentally inconsistent with the age of the child. We are now learning that ADHD is not a disorder of attention, as had long been assumed. Rather, it is a function of developmental failure in the brain circuitry that monitors inhibition and self-control.

Source: www.ed.gov

Understanding Cerebral Palsy

Click on the image to download brochure.

Cerebral palsy isn't one condition. Instead, it's a collection of disorders caused by damage to the brain before, during or shortly after birth. Cerebral palsy affects people in various ways, depending on where and to what extent the brain has been injured. In some children, symptoms — including muscles that are too weak or too tight — are apparent at birth. In other children, problems don't become evident until later.

Source: Gillette Children's Specialty Healthcare

The Puzzle of Autism

Click on the image to download

The Puzzle of Autism is an informational guide for educators who work with students on the autism spectrum. The guide explains the characteristics of autism and suggests effective classroom strategies for improving the communication, sensory, social and behavioral skills of students with autism. The Puzzle of Autism was published by the National Education Association, in collaboration with the Autism Society of America, the American Speech-Language-Hearing Association, and the National Association of School Psychologists.

For more resource materials, click here.

Source: Autism Society of America

Down Sydrome and You: A booklet for people with Down syndrome

Click on the image to download booklet

Do your have Down syndrome? Then this booklet is for you.

Down syndrome is something that happens in babies even before they are born. About one of every 800 babies born in Canada will have Down syndrome. So far, no one knows why.

The Canadian Down Syndrome Society has written this booklet to tell you some things about the
syndrome. We hope we have answered some questions you may have.

Source: Canadian Down Syndrome Society

Fragile X Syndrome

Click on the image to download handbook.

FRAGILE X SYNDROME is a hereditary condition which can cause learning problems in both males and females. It is the most common known cause of inherited mental impairment. The spectrum of intellectual involvement ranges from subtle learning difficulties and a normal IQ to severe developmental disability and autism. In addition to mental impairment, fragile X syndrome is associated with a group of physical and behavioral characteristics as well as speech and language delays.

Source: The National Fragile X Foundation

A Promising Future Together: A Guide for New Parents of Children with Down Syndrome

Click on the image to download

The National Down Syndrome Society envisions a world in which all people with Down syndrome have the opportunity to realize their life aspirations. We are committed to being the national leader in supporting and enhancing the quality of life, and realizing the potential of all people with Down syndrome.

Source: National Down Syndrome Society

Attention Deficit Hyperactivity Disorder

Click on the images to download publications.

Attention Deficit Hyperactivity Disorder (ADHD) is a condition that becomes apparent in some children in the preschool and early school years. It is hard or these children to control their behavior and/or pay attention. It is estimated that between 3 and 5 percent of children have ADHD, or approximately 2 million children in the United States. This means that in a classroom of 25 to 30 children, it is likely that at least one will have ADHD.

Source: National Institute of Mental Health

Pinay Blogroll