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Wednesday, July 15, 2009

The HELP Guide to Cerebral Palsy

The HELP Guide to Cerebral Palsy
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Dr. Nadire Berker and Dr. Selim Yalçin, members of HELP's Turkish Board, have created an excellent publication providing an overview of the diagnosis and management of Cerebral Palsy. This publication is authoritative, comprehensive, extensively illustrated, colorful, and engaging. The need for this publication is enormous, as Cerebral Palsy is common throughout the world and no affordable management guide is currently available.

Source: Global HELP

Saturday, July 11, 2009

Fragile X - A to Z: A Guide for Families By Families

Fragile X A to Z: A Guide for Families By Families
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This guide is intended to help families cope with the daily challenges of living with a child who has a disability, specifically Fragile X Syndrome. Many of the topics discussed may pertain to parents with children affected by other disabilities and with typically developing children.


Source: FRAXA Research Foundation

Thursday, July 9, 2009

Say ‘No’ to Bullying: An information leaflet for young people with spina bifida and/or hydrocephalus

Say ‘No’ to Bullying: An information leaflet for young people with spina bifida and/or hydrocephalus
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Bullying is one kind of abuse. You may have heard this word but not know what it means. Abuse is when someone treats you in a way that could hurt you – either hurt your feelings and make you very unhappy or hurt your body.


Source: Association for Spina Bifida and Hydrocephalus (UK)

Wednesday, July 1, 2009

Supporting Feeding & Oral Development in Young Children: Guidelines for Parents - Support Feeding & Oral Development in young children with DS

Supporting Feeding & Oral Development in Young Children: Guidelines for Parents - Support Feeding & Oral Development in young children with Down Syndr
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This booklet is intended to be used as a reference for the first 2 or 3 years of life. You are not expected to read it from cover to cover, but to dip in and out of it as questions arise or as you need guidance regarding your baby’s next step. It is also not intended to replace direct contact with the multidisciplinary team.


Source: Down Syndrome Ireland
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