Fragile X - A to Z: A Guide for Families By Families

Click on the image to download guide

This guide is intended to help families cope with the daily challenges of living with a child who has a disability, specifically Fragile X Syndrome. Many of the topics discussed may pertain to parents with children affected by other disabilities and with typically developing children.

Source: FRAXA Research Foundation

Families and Fragile X Syndrome

Click on the image to download publication

Fragile X syndrome (also called Fragile X) is the most common inherited form of mental retardation. It results from a change, or mutation, in a single gene, which can be passed from one generation to the next. Fragile X appears in families of every ethnic group and income level.

Source: National Institute of Child Health and Development (US)

Fragile X Syndrome

Click on the image to download handbook.

FRAGILE X SYNDROME is a hereditary condition which can cause learning problems in both males and females. It is the most common known cause of inherited mental impairment. The spectrum of intellectual involvement ranges from subtle learning difficulties and a normal IQ to severe developmental disability and autism. In addition to mental impairment, fragile X syndrome is associated with a group of physical and behavioral characteristics as well as speech and language delays.

Source: The National Fragile X Foundation